Tuesday 24 June 2014
Weekly Update
Hello my lovelies,
I hope you are all well.
I have had a bit of an up and down week. It was my anniversary on Sunday and I was in so much pain that I didn't get to enjoy it. In fact I was trying to edit my wedding dvd and ended up getting really emotional and having a melt down.
I was watching myself and although at the time I was sick with my ulcers and stuff, my pain and fatigue and stuff wasn't at the stage it is now. I was still able to work. I was still able to have a normal life. Through the sickness and tiredness then I was still able to enjoy a fortnight in Florida. I miss that. I miss so much of my life. I just got so sad, and broke down and then cried even more thinking of how much I miss my daddy in law and how amazingly supportive he was of me. I have actually felt really depressed lately, and it has been largely to do with losing one of the closest people to me. It has caused a huge set back in my condition. I had been doing so well for a few months and was able to look after him. I knew that the chances were that I would lose all the progress after he would pass away, because as we know traumatic events can cause flares.
I am having to go to the doctors again about medication because I am fed up being in agony even though I am taking anti inflammatory tablets and tramadol. In fact I have been taking co codomol on top of that and it isnt sorting it. I am feeling my right shoulder get bad again. It was this time last year I had my injection. Which really helped as it the physio but now I am getting so much pain again.
It is so frustrating because I am trying to build up my career and actually work from home so that I don't have to rely on benefits. I want to make something of myself. I am not the type of person that copes easily with not being able to work. I don't look down on those who aren't working, I just go crazy not having something to do, as I am sure a lot of you do. I love what I do, nails and make up and I am so excited being able to do spray tans now too. I cannot wait to get clients in and do that. So amazing. I love it. It is the most fun job ever. If only my stupid body wouldn't crap out on me so much. I am hoping in a years time to open a salon of my own. Of course I will probably rent out space or hire people who knows but for now I really need to build up and actually get my confidence back. I need to be fitter for it too though. Right now my body is only allowing part time hours. Which I have to be ok with. But that wont work if I own my own place...
Eughhhhh Anyway after not getting much sleep last night I am starting to get really tired. The pain is starting to increase and push through again, but I am hoping that I get over soon.
How are you guys doing? Are you having an ok week?
Love you all so much,
Lynds, xxxxxxxx
I hope you are all well.
I have had a bit of an up and down week. It was my anniversary on Sunday and I was in so much pain that I didn't get to enjoy it. In fact I was trying to edit my wedding dvd and ended up getting really emotional and having a melt down.
I was watching myself and although at the time I was sick with my ulcers and stuff, my pain and fatigue and stuff wasn't at the stage it is now. I was still able to work. I was still able to have a normal life. Through the sickness and tiredness then I was still able to enjoy a fortnight in Florida. I miss that. I miss so much of my life. I just got so sad, and broke down and then cried even more thinking of how much I miss my daddy in law and how amazingly supportive he was of me. I have actually felt really depressed lately, and it has been largely to do with losing one of the closest people to me. It has caused a huge set back in my condition. I had been doing so well for a few months and was able to look after him. I knew that the chances were that I would lose all the progress after he would pass away, because as we know traumatic events can cause flares.
I am having to go to the doctors again about medication because I am fed up being in agony even though I am taking anti inflammatory tablets and tramadol. In fact I have been taking co codomol on top of that and it isnt sorting it. I am feeling my right shoulder get bad again. It was this time last year I had my injection. Which really helped as it the physio but now I am getting so much pain again.
It is so frustrating because I am trying to build up my career and actually work from home so that I don't have to rely on benefits. I want to make something of myself. I am not the type of person that copes easily with not being able to work. I don't look down on those who aren't working, I just go crazy not having something to do, as I am sure a lot of you do. I love what I do, nails and make up and I am so excited being able to do spray tans now too. I cannot wait to get clients in and do that. So amazing. I love it. It is the most fun job ever. If only my stupid body wouldn't crap out on me so much. I am hoping in a years time to open a salon of my own. Of course I will probably rent out space or hire people who knows but for now I really need to build up and actually get my confidence back. I need to be fitter for it too though. Right now my body is only allowing part time hours. Which I have to be ok with. But that wont work if I own my own place...
Eughhhhh Anyway after not getting much sleep last night I am starting to get really tired. The pain is starting to increase and push through again, but I am hoping that I get over soon.
How are you guys doing? Are you having an ok week?
Love you all so much,
Lynds, xxxxxxxx
Monday 16 June 2014
Tuesday 10 June 2014
Overdid it again!!
Hey my darlings,
Well lets recap the last few days.
Saturday I went out for two hours in the afternoon to Boucher Road to do a little shopping, then had dinner in my inlaws and chilled the rest of the evening.
Sunday I hardly slept so passed on morning service at church, got up in time to be picked up by Lynne to go take Toby to Pets at home for a muzzle then brought him home. Walked him once before we went out and that was it. Went to church on sunday evening, then visited my mummy who is sick, then came home did a couple of videos for youtube and hit the hay.
Monday I got up around 10, did some editing and advertising and then went to pick up mum in law to go to Ikea, walked the dog first. So anyway Ikea we walked around the top level first, then had lunch then went downstairs.
So for most people that is not a lot!! For me it used to be nothing and I could've done much more.... Well this is what happened. Half way round the second level my hips and knees really started aching. By the time we were at the check out I was bent over with the pain in the small of my back, it didn't help that we had to stand there for ages. By the time we dropped mum off and I got home I was so shaky and dizzy and my head was so cloudy. I made tea for Thomas and lay down beside him. I think that was around 4.... So that was me until this afternoon around 2. I was in bed, couldn't do anything. Well before I got too bad I made myself a bacon butty and I wish I hadn't. I have been trying to have nothing with gluten in it but I had nothing else in the house. I wish I had just had the bacon. My stomach was in turmoil all through the night as well. I have to say I am really seeing the effects of gluten in my body. It really is a massive difference. So it has reassured me I am doing the right thing going off gluten.
Anyway I sat watching How I met your Mother on my Ipad last night and then before midnight I turned it off and I actually slept. I wish I could say, though, that my sleep was restful. It never is. Especially not when I am in a bad way pain wise. I have really bad nightmares. Crazy wacko nightmares. I was a vampire and we were getting hunted by people was one of them. In another I was in hiding for something. All of them had something to do with people being after me. I know there is a meaning behind it. Like no matter what I do my illness is always there wanting to take me down. I dunno lol. I think too much sometimes lol.
Every part of me aches. My fingers hurt typing but I have to push through and try and stay out of bed. I don't want to end up in bed for days, which is what this illness wants. I am shaking too. Do you guys get the shakes a lot? My neck hurts. I really need to get one of those rests for a laptop that the screen is higher and you can still type, because looking down at it is stretching my neck and shoulder muscles and causing an obscene amount of pain. So I guess I should go and sign off now.
I will check back in tomorrow and let you guys know how I am. I am going to post a video for my fibro episode showing the effects of being out and about. Really think it would be good rather than just talking about it here.
Anyway, how are you guys? How is your pain levels?
Lots of love and hugs to you.
Lynds, xxxxxx
Well lets recap the last few days.
Saturday I went out for two hours in the afternoon to Boucher Road to do a little shopping, then had dinner in my inlaws and chilled the rest of the evening.
Sunday I hardly slept so passed on morning service at church, got up in time to be picked up by Lynne to go take Toby to Pets at home for a muzzle then brought him home. Walked him once before we went out and that was it. Went to church on sunday evening, then visited my mummy who is sick, then came home did a couple of videos for youtube and hit the hay.
Monday I got up around 10, did some editing and advertising and then went to pick up mum in law to go to Ikea, walked the dog first. So anyway Ikea we walked around the top level first, then had lunch then went downstairs.
So for most people that is not a lot!! For me it used to be nothing and I could've done much more.... Well this is what happened. Half way round the second level my hips and knees really started aching. By the time we were at the check out I was bent over with the pain in the small of my back, it didn't help that we had to stand there for ages. By the time we dropped mum off and I got home I was so shaky and dizzy and my head was so cloudy. I made tea for Thomas and lay down beside him. I think that was around 4.... So that was me until this afternoon around 2. I was in bed, couldn't do anything. Well before I got too bad I made myself a bacon butty and I wish I hadn't. I have been trying to have nothing with gluten in it but I had nothing else in the house. I wish I had just had the bacon. My stomach was in turmoil all through the night as well. I have to say I am really seeing the effects of gluten in my body. It really is a massive difference. So it has reassured me I am doing the right thing going off gluten.
Anyway I sat watching How I met your Mother on my Ipad last night and then before midnight I turned it off and I actually slept. I wish I could say, though, that my sleep was restful. It never is. Especially not when I am in a bad way pain wise. I have really bad nightmares. Crazy wacko nightmares. I was a vampire and we were getting hunted by people was one of them. In another I was in hiding for something. All of them had something to do with people being after me. I know there is a meaning behind it. Like no matter what I do my illness is always there wanting to take me down. I dunno lol. I think too much sometimes lol.
Every part of me aches. My fingers hurt typing but I have to push through and try and stay out of bed. I don't want to end up in bed for days, which is what this illness wants. I am shaking too. Do you guys get the shakes a lot? My neck hurts. I really need to get one of those rests for a laptop that the screen is higher and you can still type, because looking down at it is stretching my neck and shoulder muscles and causing an obscene amount of pain. So I guess I should go and sign off now.
I will check back in tomorrow and let you guys know how I am. I am going to post a video for my fibro episode showing the effects of being out and about. Really think it would be good rather than just talking about it here.
Anyway, how are you guys? How is your pain levels?
Lots of love and hugs to you.
Lynds, xxxxxx
Friday 6 June 2014
Happy Friday Folks : Fibro fog talk
Hey my lovelies,
It is Friday night and I am sitting at the computer working on videos and my blogs. I have actually been so busy that I just realised I posted two videos today but didn't actually plan one for tomorrow. Hmmmm that wasn't a good idea.
Anyway thats not what this blog is about. I am feeling really down today illness wise. I had to cancel my friend for the second day in a row because I was just so sore I couldn't get out of bed so there was no way I would be able to have her over :-( I just get so sick and tired of having to cancel plans and not get to see people.
My body is really weak today. I feel so achey. Proper flu like pain. I remember over the years all those times I thought I had the flu when obviously it was this that was causing it. I don't know whether I am frustrated or relieved. It is so weird on the one hand I know now why all the things were happening to me and why I never got over things quickly, but also I fought for ten years to find out what was wrong and it was just my friend mentioning to me that my symptoms seemed like what she has. I dread to think what would be happening to me now if it hadn't been for that chance conversation. Thank goodness for Sue!!!
I really wanted to talk to you guys about what it is like for me to have fibro fog and how it affects my life.
Most of you reading this probably already know what fibro fog is but just in case you don't. Here is the snippet I read on a About.com website:
It is Friday night and I am sitting at the computer working on videos and my blogs. I have actually been so busy that I just realised I posted two videos today but didn't actually plan one for tomorrow. Hmmmm that wasn't a good idea.
Anyway thats not what this blog is about. I am feeling really down today illness wise. I had to cancel my friend for the second day in a row because I was just so sore I couldn't get out of bed so there was no way I would be able to have her over :-( I just get so sick and tired of having to cancel plans and not get to see people.
My body is really weak today. I feel so achey. Proper flu like pain. I remember over the years all those times I thought I had the flu when obviously it was this that was causing it. I don't know whether I am frustrated or relieved. It is so weird on the one hand I know now why all the things were happening to me and why I never got over things quickly, but also I fought for ten years to find out what was wrong and it was just my friend mentioning to me that my symptoms seemed like what she has. I dread to think what would be happening to me now if it hadn't been for that chance conversation. Thank goodness for Sue!!!
I really wanted to talk to you guys about what it is like for me to have fibro fog and how it affects my life.
Most of you reading this probably already know what fibro fog is but just in case you don't. Here is the snippet I read on a About.com website:
Brain fog (also called fibro fog or cognitive dysfunction) is one of the most common complaints of people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS). For many, it can be severe and can have just as big an impact on their lives as pain or fatigue. In fact, some people say brain fog is more of a disability than their physical symptoms.
So for me I find that I so often forget words, simple things that I have been saying from I started talking, but its like they are on the tip of my tongue but I just cannot get them out. It is a real struggle to keep up with conversations when there is more than one person talking to me. I find it so hard to concentrate on each person, its worse when they talk over each other or but in. Though the worst is when people interrupt me mid sentence because by the time I get back around to talking 9 times out of 10 I have forgotten what I was going to say. If it isn't about forgetting words I mix words up, like I would say dalking the wog, or something along those lines. I try to laugh it off mostly, but I have to say that it really really gets to me, especially when I am talking to people in a professional manner. I feel so stupid stumbling over words or forgetting what I am saying. I stop talking half way through sentences without even realising, or say something then repeat myself few minutes later not realising I have already said it.
The biggest issue for me is forgetfulness, if I don't write something down, do not expect me to remember, because within a few minutes I have basically forgotten what we were talking about or even that we talked. No joking this week I totally forgot I had been talking to someone only a few hours after. It drives me insane. I get so angry and frustrated with myself that I just cry sometimes. It is so hard for me, because although I have always had that little ditziness about me, I used to be able to talk better. I worked in offices, I took meetings, I worked in a call centre, talking was my job and I could've sold ice to an eskimo back then. Nowadays I struggle so hard to get control of what I am talking about. It takes me so much time to edit my videos because of the amount I have to edit out because I have basically rambled and repeated the same things repeatedly or said things wrong or forgotten things. It drives me crazy.
People don't get how hard something as simple as that is to live with. I have people who think it is ok to laugh at me. To make fun of me for it. That hurts me as well. It makes me feel so small. Even though they think they are doing the right thing by trying to make light of it, it doesn't work that way. Don't get me wrong compared to how I was last year with the added effects of medication I am in a different league. I am hoping that I will get better than I am now. I won't hold my breath but ho hum, there are worse things to live with I know, but that doesn't help how I feel.
Anyway, I think thats enough rambling for today. I hope this has made sense and has been helpful. Let me know in the comments section, what is the hardest thing about Fibro fog for you?
Love you all so much,
Lynds, xxxxxx
Thursday 5 June 2014
Me a neglecter of blogs... sorrrrry
Hey my lovely warriors,
I am terrible at this blogging lark!! I really need to get my finger out and do it more. I haven't even vlogged for ages, which I am ashamed about. I need to just pick up that camera and get talking. It isn't anything against filming. I have just go so busy with my main channel and editing and 'working' etc that I haven't been able to. I say 'working' because well its not like I am making any money lol. It is really a hobby for me lol.
Anyway how am I today, well apart from the elephant that has taken up residence on my neck and shoulders I probably would feel so much better. I had to cancel my lovely friend coming over because the pain is so unbearable. I had to go back and lie down for a while, it feels a little easier than first thing but it isn't going away anytime soon. I just get so fed up of feeling like this and the fact that planning my life is so dang hard because from day to day I just don't know how I am going to be feeling. I hate it. I know you all know what I mean. It just sucks so much when you have to let people down, or you miss out on seeing your friends because you can't make meet ups or get to see them. I have some friends that right now I am missing so much, and I know I am not seeing them because I cannot get to them to spend time with them. It hurts so much to lose out on friendships because I cannot guarantee my health. I don't know how much time I have spent crying over not being independent anymore.
Guys all my life I have walked everywhere, from early childhood I went walking for miles. My grandmother lives in the countryside and we used to stay there all the time and we would get up in the morning and walk and walk and walk. We would venture through fields and lanes and I loved it. Then there was the caravan, I would head one direction or another and just walk for miles and see where it took me. From a young age I would walk with my mother from the caravan to the shop over a mile away and then back, a mile doesn't seem like much now but then it was, but that shaped me for the future. As I grew up I just kept on with the walking. I would walk to work and back. Sometimes work places were an hours walk away, but that didn't stop me, I loved it. It was so refreshing. By the time I would get to work I would be ready for a day of work, whereas getting a bus left me warm, groggy and feeling sick. So anyway you get the idea. I always relied on my two feet to get me from A to B. Then as I got older my health got worse and worse and all of a sudden I had to rely on other people to take me to places. No longer could I just throw my keys and phone in my pocket and walk to my mums, or my friends or to the shopping centre. I had to plan my every move and make sure I had lifts to and from. I had my walking stick. I had to make sure I only did it on certain days so that if something else was happening that week I didn't wreck myself. It got to the point that I was seeing so much of my father in law because he was free during the day and took me everywhere I needed to go. I would pick up the phone and just ask could he help me out and he drop whatever he was doing and come to help me. We got so close that I began to call him Dad. He really was more of a dad than a father in law. Anyway I can't go into that more as the tears are tripping me already. Lets just say I miss him so much it wrecks me.
Anyway I really don't remember what I was talking about or where my point was going, but I just hate that I cannot do everything I want to do. I feel bad that I have to cancel on people or can't do the things I used to. I miss my old life everyday. I miss being able to afford the things that I had the ability to do and buy when I had a job and not have to sell stuff off just to buy new products or wait for birthdays etc.
Hmmm I didn't plan a woe is me blog today lol. But hey I wanted this blog to be what its like to live like this, so I guess this is how it has to be. No point in me leaving the dark out when this is how crap I feel today.
I get really lonely, which is why I started my youtube channel, it really gave me an outlet a way to talk to people and share my loves with people even when I physically couldn't get to see friends. I am very blessed to have a husband who is so supportive and looks after me and for Lynne who has dedicated so much of her time to being there for me. She is such a wee gem, I always feel bad asking her to do things, because I never want her to feel like I am taking advantage of her or have her feel like I take her for granted. I don't know what I would do without her, because for the most part if it wasn't for her being able to come and see me so much it would just be me here on my own. Thats the joy of being 30 most people have grown up and have their own lives and families, and everyone drifts and lives move on. I always feel guilty for that because for so long I was able to be that friend who was able to get out and go places, even through pain.
Never did I ever expect that the pain and fatigue would become like this. I used to think I knew what pain was lol. Now that pain that I knew is me on a good day. Anyway I won't go on anymore. You will all stop reading my blog if I whinge anymore. Hopefully tomorrow will be a much happier blog lol. But for today I wanted to just share how low I am feeling.
Sending you all love and hugs, and hoping your week is going well and your not in too much pain.
Loooooooves,
Lynds. xxxxxxxxx
I am terrible at this blogging lark!! I really need to get my finger out and do it more. I haven't even vlogged for ages, which I am ashamed about. I need to just pick up that camera and get talking. It isn't anything against filming. I have just go so busy with my main channel and editing and 'working' etc that I haven't been able to. I say 'working' because well its not like I am making any money lol. It is really a hobby for me lol.
Anyway how am I today, well apart from the elephant that has taken up residence on my neck and shoulders I probably would feel so much better. I had to cancel my lovely friend coming over because the pain is so unbearable. I had to go back and lie down for a while, it feels a little easier than first thing but it isn't going away anytime soon. I just get so fed up of feeling like this and the fact that planning my life is so dang hard because from day to day I just don't know how I am going to be feeling. I hate it. I know you all know what I mean. It just sucks so much when you have to let people down, or you miss out on seeing your friends because you can't make meet ups or get to see them. I have some friends that right now I am missing so much, and I know I am not seeing them because I cannot get to them to spend time with them. It hurts so much to lose out on friendships because I cannot guarantee my health. I don't know how much time I have spent crying over not being independent anymore.
Guys all my life I have walked everywhere, from early childhood I went walking for miles. My grandmother lives in the countryside and we used to stay there all the time and we would get up in the morning and walk and walk and walk. We would venture through fields and lanes and I loved it. Then there was the caravan, I would head one direction or another and just walk for miles and see where it took me. From a young age I would walk with my mother from the caravan to the shop over a mile away and then back, a mile doesn't seem like much now but then it was, but that shaped me for the future. As I grew up I just kept on with the walking. I would walk to work and back. Sometimes work places were an hours walk away, but that didn't stop me, I loved it. It was so refreshing. By the time I would get to work I would be ready for a day of work, whereas getting a bus left me warm, groggy and feeling sick. So anyway you get the idea. I always relied on my two feet to get me from A to B. Then as I got older my health got worse and worse and all of a sudden I had to rely on other people to take me to places. No longer could I just throw my keys and phone in my pocket and walk to my mums, or my friends or to the shopping centre. I had to plan my every move and make sure I had lifts to and from. I had my walking stick. I had to make sure I only did it on certain days so that if something else was happening that week I didn't wreck myself. It got to the point that I was seeing so much of my father in law because he was free during the day and took me everywhere I needed to go. I would pick up the phone and just ask could he help me out and he drop whatever he was doing and come to help me. We got so close that I began to call him Dad. He really was more of a dad than a father in law. Anyway I can't go into that more as the tears are tripping me already. Lets just say I miss him so much it wrecks me.
Anyway I really don't remember what I was talking about or where my point was going, but I just hate that I cannot do everything I want to do. I feel bad that I have to cancel on people or can't do the things I used to. I miss my old life everyday. I miss being able to afford the things that I had the ability to do and buy when I had a job and not have to sell stuff off just to buy new products or wait for birthdays etc.
Hmmm I didn't plan a woe is me blog today lol. But hey I wanted this blog to be what its like to live like this, so I guess this is how it has to be. No point in me leaving the dark out when this is how crap I feel today.
I get really lonely, which is why I started my youtube channel, it really gave me an outlet a way to talk to people and share my loves with people even when I physically couldn't get to see friends. I am very blessed to have a husband who is so supportive and looks after me and for Lynne who has dedicated so much of her time to being there for me. She is such a wee gem, I always feel bad asking her to do things, because I never want her to feel like I am taking advantage of her or have her feel like I take her for granted. I don't know what I would do without her, because for the most part if it wasn't for her being able to come and see me so much it would just be me here on my own. Thats the joy of being 30 most people have grown up and have their own lives and families, and everyone drifts and lives move on. I always feel guilty for that because for so long I was able to be that friend who was able to get out and go places, even through pain.
Never did I ever expect that the pain and fatigue would become like this. I used to think I knew what pain was lol. Now that pain that I knew is me on a good day. Anyway I won't go on anymore. You will all stop reading my blog if I whinge anymore. Hopefully tomorrow will be a much happier blog lol. But for today I wanted to just share how low I am feeling.
Sending you all love and hugs, and hoping your week is going well and your not in too much pain.
Loooooooves,
Lynds. xxxxxxxxx
Sunday 18 May 2014
Old pain coming back to haunt me
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Hey my lovelies,
Well heres an oldy. My back and stomach muscles are in spasm. Can hardly breathe through the pain. Its been a long time since this happened, next it will travel to my chest and I won't be able to move at all. Has any of you guys ever experienced similar pain.
I used to get this all the time. I remember 2008 in Florida was one of the worst times, Id be bad with it for weeks. Going in to work on no sleep at all because of the pain and then was on holiday and kept having to go home from parks and shopping because I couldn't breathe with the pain. I hope this pain tonight is a one off and not long lasting. It was horrible! I remember the first time thomas and I ever went to Downtown Disney after half an hour we were back in the car because I couldn't breathe through the pain. I thought I was going to pass out it was so bad. It starts off just below the middle of my back, then I feel pain in my stomach muscles, then it moves further up and up until my whole torso is in total spasm.
As if things weren't rubbish enough as it was already, I haven't slept for a couple of days. I just lie there tossing and turning. For the most part its not so much the pain. I just can't switch off. Thomas was convinced it was because I was on my iPad for so long in to the night, but it isn't that because the last two nights I have put it away for at least an hour or two and tried to doze off, to no avail. It is driving me insane. I didn't even get to go to church today. I know Satan is fighting against me and trying to stop me from getting to church, but there was no way I could go, simply because Id have struggled to sit, and the heat and focusing would have caused me to start drifting off. I have always struggled with things like that from a young age. People used to wonder why I would always fall asleep in classes for no reason. It would only ever happen if I was listening to someone talk for long periods of time. If I was working and active I would be fine. I have had the same issues in work places. For instance training days are the worst because theres only so long I can stay awake for. It has got worse over the years. Even when I was doing my nail technician courses I struggled with the theory part, however the practical parts I was wide awake and fine with. Exhausted by the end of the day but I can get through active days better than days were I have to concentrate on someone talking. I even find it hard to edit my videos because I am trying to focus on my own voice and start nodding off. Maybe I should do that at bed time, try and listen to my own voice lol.
Anyway I am so exhausted, it is 8:30pm and I am going to head to bed, I have had my night time medication already so I am hoping that it works. I think I will try and not touch my iPad at all tonight. I have a lot that needs done tomorrow. Dog needs to go to vets, I need to go to doctors with my mum, I have to go price a carpet. I need to sort out my salon as theres so much rubbish in it from getting the box room re painted.
Anyway ramble ramble. ....
I will chat to you all soon my lovelies. Sending you all loving hugs and prayers for pain less days and restful sleep.
God Bless,
Lyndsey xxxxxx
Hey my lovelies,
Well heres an oldy. My back and stomach muscles are in spasm. Can hardly breathe through the pain. Its been a long time since this happened, next it will travel to my chest and I won't be able to move at all. Has any of you guys ever experienced similar pain.
I used to get this all the time. I remember 2008 in Florida was one of the worst times, Id be bad with it for weeks. Going in to work on no sleep at all because of the pain and then was on holiday and kept having to go home from parks and shopping because I couldn't breathe with the pain. I hope this pain tonight is a one off and not long lasting. It was horrible! I remember the first time thomas and I ever went to Downtown Disney after half an hour we were back in the car because I couldn't breathe through the pain. I thought I was going to pass out it was so bad. It starts off just below the middle of my back, then I feel pain in my stomach muscles, then it moves further up and up until my whole torso is in total spasm.
As if things weren't rubbish enough as it was already, I haven't slept for a couple of days. I just lie there tossing and turning. For the most part its not so much the pain. I just can't switch off. Thomas was convinced it was because I was on my iPad for so long in to the night, but it isn't that because the last two nights I have put it away for at least an hour or two and tried to doze off, to no avail. It is driving me insane. I didn't even get to go to church today. I know Satan is fighting against me and trying to stop me from getting to church, but there was no way I could go, simply because Id have struggled to sit, and the heat and focusing would have caused me to start drifting off. I have always struggled with things like that from a young age. People used to wonder why I would always fall asleep in classes for no reason. It would only ever happen if I was listening to someone talk for long periods of time. If I was working and active I would be fine. I have had the same issues in work places. For instance training days are the worst because theres only so long I can stay awake for. It has got worse over the years. Even when I was doing my nail technician courses I struggled with the theory part, however the practical parts I was wide awake and fine with. Exhausted by the end of the day but I can get through active days better than days were I have to concentrate on someone talking. I even find it hard to edit my videos because I am trying to focus on my own voice and start nodding off. Maybe I should do that at bed time, try and listen to my own voice lol.
Anyway I am so exhausted, it is 8:30pm and I am going to head to bed, I have had my night time medication already so I am hoping that it works. I think I will try and not touch my iPad at all tonight. I have a lot that needs done tomorrow. Dog needs to go to vets, I need to go to doctors with my mum, I have to go price a carpet. I need to sort out my salon as theres so much rubbish in it from getting the box room re painted.
Anyway ramble ramble. ....
I will chat to you all soon my lovelies. Sending you all loving hugs and prayers for pain less days and restful sleep.
God Bless,
Lyndsey xxxxxx
Monday 12 May 2014
Fibromyalgia Awareness Day 12 May 2014
Hello my beautiful warriors and friends.
I hope you are all having a pain free evening, day, afternoon or whatever time of day or night it is.
I have been loving watching the feeds on Facebook be inundated with people posting about fibro awareness and sharing other peoples status's and pictures etc.
I have been neglecting talking about fibro so much on my youtube channel and I really need to get that sorted because one of the major reasons I started my channel was to show people more about what life is like living with this horrible condition.
I have a video coming this week talking about Wheatgrass and how it has affected my body and I want to start doing more videos on ways to try and help our bodies as well. I am hoping to get other peoples input in to what helps them and how they are trying to battle it along side or even instead of medication.
On the note of medication, I have had a horrendous few days, I ran out of my tramadol last week, I thought I had more than I did and then when my mum went to pick up my script on friday the chemist had screwed up and couldn't find the script. So I was going crazy, the pain was horrible, I couldn't sleep. My left hand side from my neck to my foot gets the worst restless pain and it has been keeping me awake. This morning I was still awake when Thomas came home at 6am, I ended up going to lie on the sofa and finally dozed off around 8am I slept for two hours. So I am pretty tired now. I was taking cocodomal over the weekend, but it was basically just taking the edge off. Now that I have tramadol back in my system I am feeling a little better but it will take days for it to actually ease properly from the state it is now and also to feel more awake.
I am trying to build a business for myself to work from home, but it is starting to feel like 2 steps forward 10 back. I feel like every time I get somewhere and feel more human and like I can actually really get stuck in my body laughs at me and thinks yeah right!! I hate that I have not been making money. I hate being on benefits. Hmmmm perhaps this could actually be a video talking about how it feels to live on benefits?!? What do you think? Do you think it could be a good video to give insight in to what it actually makes us feel like to have to rely on benefits???
Anyway I am off to bed. I want to get some filming done tomorrow and some blogging on my Beauty Blog.
Love and prayers to you all,
Lynds
xxxxxx
Youtube.com/lyndseymilliganhb (beauty)
youtube.com/thelyndseymilligan (vlogging)
twitter.com/lyndsmilligan
I hope you are all having a pain free evening, day, afternoon or whatever time of day or night it is.
I have been loving watching the feeds on Facebook be inundated with people posting about fibro awareness and sharing other peoples status's and pictures etc.
I have been neglecting talking about fibro so much on my youtube channel and I really need to get that sorted because one of the major reasons I started my channel was to show people more about what life is like living with this horrible condition.
I have a video coming this week talking about Wheatgrass and how it has affected my body and I want to start doing more videos on ways to try and help our bodies as well. I am hoping to get other peoples input in to what helps them and how they are trying to battle it along side or even instead of medication.
On the note of medication, I have had a horrendous few days, I ran out of my tramadol last week, I thought I had more than I did and then when my mum went to pick up my script on friday the chemist had screwed up and couldn't find the script. So I was going crazy, the pain was horrible, I couldn't sleep. My left hand side from my neck to my foot gets the worst restless pain and it has been keeping me awake. This morning I was still awake when Thomas came home at 6am, I ended up going to lie on the sofa and finally dozed off around 8am I slept for two hours. So I am pretty tired now. I was taking cocodomal over the weekend, but it was basically just taking the edge off. Now that I have tramadol back in my system I am feeling a little better but it will take days for it to actually ease properly from the state it is now and also to feel more awake.
I am trying to build a business for myself to work from home, but it is starting to feel like 2 steps forward 10 back. I feel like every time I get somewhere and feel more human and like I can actually really get stuck in my body laughs at me and thinks yeah right!! I hate that I have not been making money. I hate being on benefits. Hmmmm perhaps this could actually be a video talking about how it feels to live on benefits?!? What do you think? Do you think it could be a good video to give insight in to what it actually makes us feel like to have to rely on benefits???
Anyway I am off to bed. I want to get some filming done tomorrow and some blogging on my Beauty Blog.
Love and prayers to you all,
Lynds
xxxxxx
Youtube.com/lyndseymilliganhb (beauty)
youtube.com/thelyndseymilligan (vlogging)
twitter.com/lyndsmilligan
Tuesday 29 April 2014
Flare Time: Day Two
Hey everyone,
I didn't get posting yesterday as I was in too much pain to do anything yesterday and couldn't really think about what to put.
I was planning on talking about fibro fog yesterday, but I have decided to talk about Flare ups instead. I think this is a very good topic as people tend to forget that even though we may have good days, it doesn't mean we won't have flares.
What is a Flare Up
A flare up is when our body has taken more than it can cope with and our pain is heightened, our fibro fog is worse and our fatigue is more than normal.
Causes
There are many things that will cause this to happen:
Too much exercise can be a huge factor
A traumatic experience; death of a loved one, an accident, loss of job
Sickness; Having the flu or other viral infections can be triggers
Changes in the weather; extreme climate changes are often a trigger
Hormones; Pms or Menopause can often trigger a flare
Lack of sleep; changes in sleeping routine or sleep disturbances can be a massive contributor
Treatment; changes to medication, or other treatments such as physio or other physical treatments
Travelling; any forms of travel can affect your body, such as sleeping in different bed, long distances in car, plane or other forms of transport can cause the body to stiffen and may cause your body to weaken and flare up
How to prevent flares
There is no actual prevention from all triggers as some cannot be controlled. However there are ways to keep track of yourself and your body and try to ensure that the ones you can be deterred or decreased.
One thing I find really helpful is a diary. You could keep track of things like weather, pain, activities, sleep pattern, food intake, medication. Just taking a few minutes each day to write these things down may help you to ensure that certain triggers don't happen.
For example, my current flare up is due to 4 days of excessive walking. Thursday I walked toby for over half an hour, friday I did the same, Saturday I took him to the beach and then walked him in the evening as well, Sunday I walked him twice also. Sunday morning I already felt more tired and my pain was higher than normal, but I continued on regardless, cut to Sunday night and I am in so much pain I cannot get to sleep, I lay awake all night and ended up sitting with Thomas having a cup of tea at 4:30am. I finally got over to sleep around 8am and woke up around 12 in horrendous pain, I could hardly move. Had I paid attention to my body on Sunday and rested instead I wouldn't have ended up in so much pain.
How long does a flare up last
There is no real rule of thumb on how long a flare up will last, for some cases they can last a day or two, sometimes a few weeks. My most extreme flare up was while I was still going through the diagnosis process and I would say it lasted the better part of a year. Some people can last for years in a flare up and just feel like it is the norm for them to be in so much pain. I started to think that I would never have a normal life again when after 18 months I was still having more bad days than good. In fact going out one day caused me to be in bed for the rest of the week. I was so grateful when I started having more days were I could feel normal again.
How to treat a flare up
So far the only thing I find helps is a lot of rest. I do generally use heat patches or hot water bottles on the most extreme pain places, but this will only ease the pain slightly until you move the heat away and then it will be back so it is not a permanent treatment. I try to spend most of my rest time lying down but with pillows propping me in different angles as I find that lying flat on the bed hurts me more. Sadly as there are not proper cure of this illness as you know and treatment is just about medication and managing the symptoms.
If you have any other ideas of how we should treat a flare up, please let me know in the comments as this would be really helpful to other people as well.
I have to say one of the hardest things is trying to get people to remember that although one day we may be able to get up and go and do something doesn't mean the next day we will be able to again. I have found so many different times that people in my life have compared days were I have been out of the house and yet not able to do it on another. It has taken me a long time to get over this actually being hurtful. I have got to a stage now where I just take a deep breath and remember that I don't always know what is going on with other people in their private lives, so I cannot expect them to know exactly what is going on with me and how my body changes from day to day.
Anyway, I hope this has all made sense, as right now my head is getting really sore looking at the computer screen and I am not actually able to think straight now. So I am going to go and rest for a while.
I am sending you all loving hugs and praying you are having a lesser pain day.
Love you all,
Lyndsey xxx
I didn't get posting yesterday as I was in too much pain to do anything yesterday and couldn't really think about what to put.
I was planning on talking about fibro fog yesterday, but I have decided to talk about Flare ups instead. I think this is a very good topic as people tend to forget that even though we may have good days, it doesn't mean we won't have flares.
What is a Flare Up
A flare up is when our body has taken more than it can cope with and our pain is heightened, our fibro fog is worse and our fatigue is more than normal.
Causes
There are many things that will cause this to happen:
Too much exercise can be a huge factor
A traumatic experience; death of a loved one, an accident, loss of job
Sickness; Having the flu or other viral infections can be triggers
Changes in the weather; extreme climate changes are often a trigger
Hormones; Pms or Menopause can often trigger a flare
Lack of sleep; changes in sleeping routine or sleep disturbances can be a massive contributor
Treatment; changes to medication, or other treatments such as physio or other physical treatments
Travelling; any forms of travel can affect your body, such as sleeping in different bed, long distances in car, plane or other forms of transport can cause the body to stiffen and may cause your body to weaken and flare up
How to prevent flares
There is no actual prevention from all triggers as some cannot be controlled. However there are ways to keep track of yourself and your body and try to ensure that the ones you can be deterred or decreased.
One thing I find really helpful is a diary. You could keep track of things like weather, pain, activities, sleep pattern, food intake, medication. Just taking a few minutes each day to write these things down may help you to ensure that certain triggers don't happen.
For example, my current flare up is due to 4 days of excessive walking. Thursday I walked toby for over half an hour, friday I did the same, Saturday I took him to the beach and then walked him in the evening as well, Sunday I walked him twice also. Sunday morning I already felt more tired and my pain was higher than normal, but I continued on regardless, cut to Sunday night and I am in so much pain I cannot get to sleep, I lay awake all night and ended up sitting with Thomas having a cup of tea at 4:30am. I finally got over to sleep around 8am and woke up around 12 in horrendous pain, I could hardly move. Had I paid attention to my body on Sunday and rested instead I wouldn't have ended up in so much pain.
How long does a flare up last
There is no real rule of thumb on how long a flare up will last, for some cases they can last a day or two, sometimes a few weeks. My most extreme flare up was while I was still going through the diagnosis process and I would say it lasted the better part of a year. Some people can last for years in a flare up and just feel like it is the norm for them to be in so much pain. I started to think that I would never have a normal life again when after 18 months I was still having more bad days than good. In fact going out one day caused me to be in bed for the rest of the week. I was so grateful when I started having more days were I could feel normal again.
How to treat a flare up
So far the only thing I find helps is a lot of rest. I do generally use heat patches or hot water bottles on the most extreme pain places, but this will only ease the pain slightly until you move the heat away and then it will be back so it is not a permanent treatment. I try to spend most of my rest time lying down but with pillows propping me in different angles as I find that lying flat on the bed hurts me more. Sadly as there are not proper cure of this illness as you know and treatment is just about medication and managing the symptoms.
If you have any other ideas of how we should treat a flare up, please let me know in the comments as this would be really helpful to other people as well.
I have to say one of the hardest things is trying to get people to remember that although one day we may be able to get up and go and do something doesn't mean the next day we will be able to again. I have found so many different times that people in my life have compared days were I have been out of the house and yet not able to do it on another. It has taken me a long time to get over this actually being hurtful. I have got to a stage now where I just take a deep breath and remember that I don't always know what is going on with other people in their private lives, so I cannot expect them to know exactly what is going on with me and how my body changes from day to day.
Anyway, I hope this has all made sense, as right now my head is getting really sore looking at the computer screen and I am not actually able to think straight now. So I am going to go and rest for a while.
I am sending you all loving hugs and praying you are having a lesser pain day.
Love you all,
Lyndsey xxx
Sunday 27 April 2014
Happy Sunday Everyone
Hey my beautiful friends,
I hope you are all having a blessed Sunday.
I am doing ok, didn't have the best sleep last night, and woke up in a lot of pain. Ended up staying in bed until nearly lunch time. From about 11:30 I was just lying watching Youtube that passed a little time before I had to get up and go to my inlaws.
So had a nice wee walk with hubby, toby and my nephew. Poor kid just isn't used to the distance we walk lol, got half way and he was begging to go back. Funny he couldn't quite fathom that it would be the same distance home if we kept going than if we went back the way lol, but kids are kids so we walked balk and chilled for a bit. Had some lunch and watched guff on tv. Then before heading home at dinner time toby and I nipped out for another we walk. So that is me done for the day, my brother in law will do the other walks tonight.
Tonight I am spending the night editing some videos, and possibly doing another few. Have you seen my Youtube Channel? It is all about beauty :-) with health related stuff as well. I have, however, been a little stale with getting my health videos up. I have a few ideas though so hopefully this week I will get back to posting more. Do you guys watch beauty videos? Do you enjoy watching stuff on Youtube? I have to say I would be totally lost without youtube, from I stopped working I was watching youtube videos all the time during the night and it gave me the inspiration to start my own. But anyway, I won't go in to that too much. This isn't about that.
Anyways my lovelies, it is bed time now for me, I am getting really really sore now, my wee bones are aching. I am hoping that this blog will help you guys as much as it helps me. I have really found that talking about my life actually helps me get through it.
Obviously I haven't gone in to all the details of my illness fully but I will, with each day I will talk about different things. For instance, tomorrow I would like to talk about what it is like to live with the constant tiredness and the challenges I face with that. I will go through other things like fibro fog, the other sicknesses it attracts, the lack of social life, the loss of relationships, how it feels to have to leave work, how my faith in God helps me through each day. I have so much more but right now I cannot even think straight so I am signing off for now.
Love you all so much, sending you gentle hugs.
Lyndsey xxxxx
I hope you are all having a blessed Sunday.
I am doing ok, didn't have the best sleep last night, and woke up in a lot of pain. Ended up staying in bed until nearly lunch time. From about 11:30 I was just lying watching Youtube that passed a little time before I had to get up and go to my inlaws.
So had a nice wee walk with hubby, toby and my nephew. Poor kid just isn't used to the distance we walk lol, got half way and he was begging to go back. Funny he couldn't quite fathom that it would be the same distance home if we kept going than if we went back the way lol, but kids are kids so we walked balk and chilled for a bit. Had some lunch and watched guff on tv. Then before heading home at dinner time toby and I nipped out for another we walk. So that is me done for the day, my brother in law will do the other walks tonight.
Tonight I am spending the night editing some videos, and possibly doing another few. Have you seen my Youtube Channel? It is all about beauty :-) with health related stuff as well. I have, however, been a little stale with getting my health videos up. I have a few ideas though so hopefully this week I will get back to posting more. Do you guys watch beauty videos? Do you enjoy watching stuff on Youtube? I have to say I would be totally lost without youtube, from I stopped working I was watching youtube videos all the time during the night and it gave me the inspiration to start my own. But anyway, I won't go in to that too much. This isn't about that.
Anyways my lovelies, it is bed time now for me, I am getting really really sore now, my wee bones are aching. I am hoping that this blog will help you guys as much as it helps me. I have really found that talking about my life actually helps me get through it.
Obviously I haven't gone in to all the details of my illness fully but I will, with each day I will talk about different things. For instance, tomorrow I would like to talk about what it is like to live with the constant tiredness and the challenges I face with that. I will go through other things like fibro fog, the other sicknesses it attracts, the lack of social life, the loss of relationships, how it feels to have to leave work, how my faith in God helps me through each day. I have so much more but right now I cannot even think straight so I am signing off for now.
Love you all so much, sending you gentle hugs.
Lyndsey xxxxx
Saturday 26 April 2014
Welcome to my blog!
Hello everyone,
I decided that I wanted to start a blog to talk about my life with my chronic illness. So I guess I should start by telling you a little about me:
My name is Lyndsey, I am married, have been with my husband for ten years. I am a Christian. We have two fur babies. I have just recently turned 30 and for the longest time I have lived with Chronic Pain and Fatigue.
I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome in November of 2012. It had taken me many years going to the doctors and asking for help for my pain, my constant illnesses etc before something was finally done about it. I first started experiencing severe pain when I was 18. The doctor sent me to physio and gave me pain killers, this went on for years, I would go back and forward to the doctors. I have taken so many different medications that most ended up being ineffective. There were a few times over the last 12 years that my pain would get so extreme that breathing would actually hurt, I would spend days crying and yet still tried to go to work. I remember a point were I hadn't slept for a week and yet I was still getting up every morning and going to work. It was horrible. Those periods lasted a few weeks at a time and then eased, however I lived every day in pain, just more manageable. It was two years ago around this time that my pain started getting really bad again, I was working as a care assistant in a nursing home, I was happy, I loved my job and although it was hard going it was the most rewarding thing ever. It was in june of 2012 that I went off on sick thinking all I needed was a few weeks and I would be fit and ready to go back to work, well one month rolled in to two, then three and so on. I was getting worse not better. The doctor was trying all sorts of medications, different combinations and dosages, nothing was helping.
I had also been having severe pain in my shoulder, it seemed to be coming from right under my shoulder blade. I could not lift my arm up, I could not carry anything in that hand because the pain was so excruciating. I knew this was separate to the over all pain I was going through, it just wasn't the same at all. I remember during that summer waking up one day and not being able to move my head, I stayed in bed the whole day, but the following day I couldn't take it anymore and went to the hospital. Well that was a total waste of my time and energy. I sat for 3 hours, I was treated like a druggy by the doctor who saw me, even though by this stage I had been for an X-ray and they were able to see that there was something going on with my spine and he knew I was waiting for an MRI. He literally said to me 'What do you want me to do' I burst in to tears, I thought hospitals were supposed to be helpful.
Anyway, after a few months of pain and back and forward to the doctors, I was having coffee with a friend and she asked what my symptoms were and told me that they all sounded so similar to hers and that she has fibromyalgia, well I looked it up and sure enough I had majority of the symptoms. So I went to see the doctor again and asked did they think it could be this, I was referred to a rheumatologist and within two months had a diagnosis. I was still trying different combinations of medication, last year I had a nerve blocker in my shoulder, which helped that for about 5-6 weeks. It hasn't been as bad since, though it does play up a lot. I have been on patches for pain, but recently just had to stop them as they were causing allergic reactions and I was tearing my skin apart. So I am back on tablets trying different dosage and combination once again.
It is so hard because each individual is different and not all medications work for everyone. So it is all trial and error.
Anyway, as some of you may already know, last year I started a youtube channel. I was in a very dark place because my life had become so limited and I couldn't really get out much. So I started talking to a camera. It made me feel like I had company. I decided I wanted to incorporate beauty as well as my illness in to it, as I needed people to know that I may have fibro but that does not define me. I am fighting it, I am not letting it win. So twice a week I upload beauty videos, and once a week I upload a video talking about my illness. Although I am thinking of changing it to every other week, as I wanted to do this blog instead. I also have a channel were I Vlog most days just to share day to day living with fibro.
So I am hoping to be able to do this everyday and talk to you guys about life and battling a chronic invisible illness. Tomorrow I will talk about living with fibro, daily life. As I think I have rambled enough for today.
Sending you all massive hugs and love,
Lyndsey
xxxxxxxx
God Bless you all. xxx
**** Edit: I should have also added that I have battled an Underactive Thyroid from my late teens as well as arthritis in my wrists. Anyway I will talk more about these things in more of my posts. ****
I decided that I wanted to start a blog to talk about my life with my chronic illness. So I guess I should start by telling you a little about me:
My name is Lyndsey, I am married, have been with my husband for ten years. I am a Christian. We have two fur babies. I have just recently turned 30 and for the longest time I have lived with Chronic Pain and Fatigue.
I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome in November of 2012. It had taken me many years going to the doctors and asking for help for my pain, my constant illnesses etc before something was finally done about it. I first started experiencing severe pain when I was 18. The doctor sent me to physio and gave me pain killers, this went on for years, I would go back and forward to the doctors. I have taken so many different medications that most ended up being ineffective. There were a few times over the last 12 years that my pain would get so extreme that breathing would actually hurt, I would spend days crying and yet still tried to go to work. I remember a point were I hadn't slept for a week and yet I was still getting up every morning and going to work. It was horrible. Those periods lasted a few weeks at a time and then eased, however I lived every day in pain, just more manageable. It was two years ago around this time that my pain started getting really bad again, I was working as a care assistant in a nursing home, I was happy, I loved my job and although it was hard going it was the most rewarding thing ever. It was in june of 2012 that I went off on sick thinking all I needed was a few weeks and I would be fit and ready to go back to work, well one month rolled in to two, then three and so on. I was getting worse not better. The doctor was trying all sorts of medications, different combinations and dosages, nothing was helping.
I had also been having severe pain in my shoulder, it seemed to be coming from right under my shoulder blade. I could not lift my arm up, I could not carry anything in that hand because the pain was so excruciating. I knew this was separate to the over all pain I was going through, it just wasn't the same at all. I remember during that summer waking up one day and not being able to move my head, I stayed in bed the whole day, but the following day I couldn't take it anymore and went to the hospital. Well that was a total waste of my time and energy. I sat for 3 hours, I was treated like a druggy by the doctor who saw me, even though by this stage I had been for an X-ray and they were able to see that there was something going on with my spine and he knew I was waiting for an MRI. He literally said to me 'What do you want me to do' I burst in to tears, I thought hospitals were supposed to be helpful.
Anyway, after a few months of pain and back and forward to the doctors, I was having coffee with a friend and she asked what my symptoms were and told me that they all sounded so similar to hers and that she has fibromyalgia, well I looked it up and sure enough I had majority of the symptoms. So I went to see the doctor again and asked did they think it could be this, I was referred to a rheumatologist and within two months had a diagnosis. I was still trying different combinations of medication, last year I had a nerve blocker in my shoulder, which helped that for about 5-6 weeks. It hasn't been as bad since, though it does play up a lot. I have been on patches for pain, but recently just had to stop them as they were causing allergic reactions and I was tearing my skin apart. So I am back on tablets trying different dosage and combination once again.
It is so hard because each individual is different and not all medications work for everyone. So it is all trial and error.
Anyway, as some of you may already know, last year I started a youtube channel. I was in a very dark place because my life had become so limited and I couldn't really get out much. So I started talking to a camera. It made me feel like I had company. I decided I wanted to incorporate beauty as well as my illness in to it, as I needed people to know that I may have fibro but that does not define me. I am fighting it, I am not letting it win. So twice a week I upload beauty videos, and once a week I upload a video talking about my illness. Although I am thinking of changing it to every other week, as I wanted to do this blog instead. I also have a channel were I Vlog most days just to share day to day living with fibro.
So I am hoping to be able to do this everyday and talk to you guys about life and battling a chronic invisible illness. Tomorrow I will talk about living with fibro, daily life. As I think I have rambled enough for today.
Sending you all massive hugs and love,
Lyndsey
xxxxxxxx
God Bless you all. xxx
**** Edit: I should have also added that I have battled an Underactive Thyroid from my late teens as well as arthritis in my wrists. Anyway I will talk more about these things in more of my posts. ****
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